Did you know a common sign of PSC is losing response to the IBD medications you try?
Since my ulcerative colitis diagnosis in 2014, I’ve tried countless medications, including prednisone, 5-ASAs (like mesalamine, sulfasalazine, and Apriso), enemas, biologics, and more, and none of them brought me relief for more than a few months.
I Failed Remicade (Without Developing Antibodies)
I was on Remicade for about a year and a half, but it slowly stopped working (even after increasing my dosage and frequency.) The odd thing is that I never developed antibodies for Remicade.
I didn’t find out until later that this unresponsiveness to inflammatory bowel disease (IBD) medications can be a sign of PSC. This is a sign you might have PSC.
Discovering My Elevated Liver Numbers
On top of this, my gastroenterologist noticed that I had elevated liver numbers around September 2017. They weren’t extremely high, but they were more elevated than they should have been.
My GI, Dr. Yinka Davies, is a PSC specialist, so she recognized the red flags of my elevated liver numbers and unresponsiveness to medications. She immediately ordered lots of non-invasive tests to find out what was causing the high liver enzymes.
Read the next post to learn about these three tests and their results.
Read the Rest of My PSC Diagnosis Journey
