Chapter 9: What to Expect for Your First Remicade Infusion

6 thoughts on “Chapter 9: What to Expect for Your First Remicade Infusion”

  1. Great post! It made me cry. I’m getting my first Remicade infusion this Thursday. I have had UC for 12 years and always dreaded the day I might have to go on a biologic, but now I’m (mostly) ready for it. I really want to get off prednisone!

    1. Thank you for your kind words! You’re not alone, I had that same reaction when I was first told I needed to start biologics; it’s such a different territory. But the nurses will make you comfortable, especially if you tell them it’s your first time 🙂 (My advice is to always ask the nurse for a blanket, pillow, and hand warmer, if they have them available. It can be chilly in there and those things always help me relax, too). I’m sure your infusion tomorrow will go smoothly, and I hope Remicade is your forever drug 🙂 I’ll be thinking of ya!

      1. Thanks for the super nice and supportive response! It went fairly well yesterday. I felt a bit lightheaded at the end of the infusion and for about 2-3 hours afterwards but not too terrible. My blood pressure dropped to 88/53 by the end of the infusion, but the nurses didn’t seem worried at all. I was worried so I called them and they told me I could come back in and have them re-check my blood pressure 1.5 hours after the infusion and it was up to 104/63, so closer to normal for me. I have a lot of anxiety about the possible side effects of this medication. 🙁 They didn’t keep me afterwards to monitor me or give me pre-meds, and I didn’t get a super comfy recliner chair or any privacy. I was in a room with other patients getting IV infusions. So that was a bit of a bummer but oh well.

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