Hi there! Welcome to part three of this six-part blog series about my crazy rollercoaster journey with autoimmune pancreatitis. Did you miss part one or two? Check them out here! This post will cover my third (and final) hospital stay, my specialty endoscopy procedure, and my super strange pathology results. We left off in late […]
Living with Autoimmune Pancreatitis, Part 2 of 6: My Second Pancreatitis Hospitalization, Digestive Enzymes, and My Unofficial Diagnosis
Welcome back to part two of this 6-part blog series about my recent journey with autoimmune pancreatitis! If you missed part one, be sure to check it out here first. It’s all about my pancreatitis symptoms, blood tests and procedures I had done, and my first (of three) hospital stays. Today’s post will cover my […]
Living with Autoimmune Pancreatitis, Part 1 of 6: My Health Update, Pancreatitis Symptoms, and First Hospitalization
In December 2023, my world tipped upside down. I was just coming out of a six-month ulcerative colitis flare. One day, it felt like a literal bowling ball had lodged itself in my upper abdomen. It hurt to move. It hurt to eat. It hurt to breathe. The only thing that gave me some relief […]
PSC Patient’s Family Says the “Life” Has Returned to Her Face After Three Months on Oral Vancomycin
Ana María Hunt submitted her story about how she went from near-death to life, thanks to oral vancomycin. Ana María, a 52-year old PSC patient, had been living with liver cirrhosis. In addition, she’d been experiencing debilitating symptoms including brain fog and chronic fatigue. Because of this, she’d had to stop working. Then, she started […]
3 Documents You Need to Know if you Take Oral Vancomycin for PSC
If you’re taking oral vancomycin for your PSC, there are three documents you NEED to be aware of. Understanding these three documents may help you access oral vancomycin from a physician and from your insurance. All three documents are associated with the American Association for the Study of Liver Diseases (AASLD). Let’s take a deep […]
How the AASLD’s Guidance and Support Statement Will Impact the PSC Community’s Access to Oral Vancomycin
On September 9, 2022, the American Association for the Study of Liver Diseases (AASLD) officially published their PSC Guidance as well as an Support Statement. In this post, I’m going to share why the Guidance for the oral vancomycin section is negative, why the Support Statement is positive, and what this means for PSC patients […]