At age 15 and in the second stage of liver fibrosis, Leonardo started taking the Firvanq brand of liquid vancomycin. He takes 500 mg twice a day and has experienced no vancomycin-related side effects. Not only did vancomycin lower all his liver enzymes to normal, but also helped him get into remission from his ulcerative […]
Student Athlete Returns to the Field Thanks to Vancomycin
Cynthia is the mother of a PSC patient, and she submitted her daughter’s astounding vancomycin story. Cynthia’s daughter (who’s name will remain anonymous for privacy reasons) started taking 2,250 mg of the ANI Pharmaceuticals brand at age 15. She was in stage one fibrosis at the time and also lives with ulcerative colitis. She began […]
Oral Vancomycin Lowered PSC Patient’s MELD Score and Increased Quality of Life
Trigger warning: thoughts of suicide. This post includes sensitive topics and some which may be triggering for readers. If you need support, someone to talk to, or are currently in distress, here are some helpful resources for you: The National Suicide Prevention Lifeline at 1-800-273-8255 or you can text “NAMI” to 741-741 to talk with […]
“Vancomycin Gave Me My Life Back!” Says PSC Patient: A Story from Cholangiocarcinoma to Cancer-Free
Mandy Ulseth submitted her incredible, heart-warming, hope-giving story about her experience with vancomycin. Mandy—a PSC and Crohn’s patient—started taking the ANI Pharmaceuticals brand of vancomycin in her early thirties. When she started vancomycin, she was in stage two liver fibrosis and was also living with gallbladder cancer and intrahepatic cholangiocarcinoma. Before vancomycin, Mandy was dealing […]
6 Signs You Might Have Iron-Deficiency Anemia (And What to Do When Your Doctor Doesn’t Believe You)
The last few months of 2020, I felt off. I blamed it on my chronic fatigue at first. But after listening to my body and noticing some very abnormal symptoms, I brought up my concerns with my gastroenterologist. In this blog post, I share the six signs that pointed toward iron-deficiency anemia, and four ways […]
3 Things That Help Me Emotionally Cope With Living With a Rare Disease
In honor of Rare Disease Day today, I’d like to share how I emotionally cope with living with the rare disease, primary sclerosing cholangitis (PSC) journey. I also have written a list for you at the bottom of this post sharing my top three favorite rare disease organizations! What is Primary Sclerosing Cholangitis? I live […]