Did you know a common sign of PSC is losing response to the IBD medications you try? Since my ulcerative colitis diagnosis in 2014, I’ve tried countless medications, including prednisone, 5-ASAs (like mesalamine, sulfasalazine, and Apriso), enemas, biologics, and more, and none of them brought me relief for more than a few months. I Failed […]
On Feeling Invisible: The Thoughts and Wishes of a Chronic Illness Patient
Happy Crohn’s and Colitis Awareness Week! The theme for Awareness Week this year is “Making the invisible visible by sharing a day in the life with IBD.” In today’s blog post, I share my innermost thoughts and wishes as someone living with an invisible disease. Life with Invisible Symptoms My colon was almost destroyed because […]
Book Review: “My Beautiful Detour: An Unthinkable Journey from Gutless to Grateful”
Happy October! Here in Tennessee, the leaves are starting to turn and there’s been a refreshing nip in the air. In other words, it’s been perfect weather to cozy up by the fireplace, sip on some steaming tea, and read! Today, I bring you my latest book review of My Beautiful Detour: An Unthinkable Journey […]
4 Reasons Why Chronic Illness Changed My Motivation for Exercising
I used to work out because I wanted to look good. Chronic illness has changed that. Keep on reading to learn my new-found motivations for exercise and the life-changing event that launched this change. 4 New Reasons Why I Exercise I used to work out to look good. But now, living with chronic illness, I […]
I Joined an IBD Research Study That Will Help Us Learn to Predict Flares
Ulcerative colitis and Crohn’s disease can make our lives unpredictable. As a very organized person who loves to plan, it’s upsetting to me that IBD takes away a lot of my control over my own life and body. Will I flare again? What will I do if my current medication fails me? What other medications […]
Book Review: “The Things We Don’t Say: An Anthology of Chronic Illness Truths,” Edited By Julie Morgenlender
I’m writing this during the 2020 quarantine. I’m sure getting tired of this pandemic, but I have to say, there was a definite perk throughout all this chaos. It was reading the newly released book The Things We Don’t Say: An Anthology of Chronic Illness Truths, edited by Julie Morgenlender. Keep on reading to learn […]