If you’re taking oral vancomycin for your PSC, there are three documents you NEED to be aware of. Understanding these three documents may help you access oral vancomycin from a physician and from your insurance. All three documents are associated with the American Association for the Study of Liver Diseases (AASLD). Let’s take a deep […]
How the AASLD’s Guidance and Support Statement Will Impact the PSC Community’s Access to Oral Vancomycin
On September 9, 2022, the American Association for the Study of Liver Diseases (AASLD) officially published their PSC Guidance as well as an Support Statement. In this post, I’m going to share why the Guidance for the oral vancomycin section is negative, why the Support Statement is positive, and what this means for PSC patients […]
Oral Vancomycin for PSC: How the Updated AASLD Guidance May Impact Your Ability to Access Vancomycin
In early July 2022, I learned from the American Association for the Study of Liver Disease (AASLD) that they’ll be updating their PSC Guidance to limit the use of oral vancomycin to clinical trials. Their Guidance will also state that treating IBD associated with PSC is outside their scope. If this AASLD Guidance passes, insurance […]
3 Things That Help Me Emotionally Cope With Living With a Rare Disease
In honor of Rare Disease Day today, I’d like to share how I emotionally cope with living with the rare disease, primary sclerosing cholangitis (PSC) journey. I also have written a list for you at the bottom of this post sharing my top three favorite rare disease organizations! What is Primary Sclerosing Cholangitis? I live […]
3 Major Things a Liver Biopsy Can Tell You (Plus 7 Common Reasons Why People Get the Procedure)
Welcome back to the fourth and final installment about my liver biopsy experience! In today’s post, I’m going to talk less about my personal liver biopsy experience and more about liver biopsies in general—particularly why people get this procedure and what your results can tell you about your health. If you missed Part 1 (all […]
4 Types of Pain You Might Experience After your Liver Biopsy and How to Manage It
Welcome back to my 4-part series all about the liver biopsy experience! In this post, I’m going to share the types of pain I experienced in my liver, shoulder, back, and chest after my liver biopsy and how I helped manage the pain without medication. If you missed Part 1 of this liver biopsy series […]