Ana María Hunt submitted her story about how she went from near-death to life, thanks to oral vancomycin. Ana María, a 52-year old PSC patient, had been living with liver cirrhosis. In addition, she’d been experiencing debilitating symptoms including brain fog and chronic fatigue. Because of this, she’d had to stop working. Then, she started […]
3 Documents You Need to Know if you Take Oral Vancomycin for PSC
If you’re taking oral vancomycin for your PSC, there are three documents you NEED to be aware of. Understanding these three documents may help you access oral vancomycin from a physician and from your insurance. All three documents are associated with the American Association for the Study of Liver Diseases (AASLD). Let’s take a deep […]
Oral Vancomycin for PSC: How the Updated AASLD Guidance May Impact Your Ability to Access Vancomycin
In early July 2022, I learned from the American Association for the Study of Liver Disease (AASLD) that they’ll be updating their PSC Guidance to limit the use of oral vancomycin to clinical trials. Their Guidance will also state that treating IBD associated with PSC is outside their scope. If this AASLD Guidance passes, insurance […]
Oral Vancomycin Saves High School Football Star from Unnecessary Intestinal Surgery
Luke was in stage two liver fibrosis in high school. He couldn’t find remission from his ulcerative colitis and his gastroenterologist was planning an ERCP and colectomy surgery until he was placed on vancomycin for a C. diff infection. His symptoms immediately improved on vancomycin and, thankfully, his hepatologist was willing to prescribe the antibiotic. […]
Oral Vancomycin Allows PSC Patient to Live Out Her Dreams of Becoming an Animator
Right after Emily Kimes moved across the country to pursue her dream, she was diagnosed with PSC. Her mother, her biggest advocate, scoured the internet for information on PSC and came across the use of vancomycin. Emily and her mother fought hard to find a doctor willing to prescribe the drug. Once they found someone […]
Student Athlete Returns to the Field Thanks to Vancomycin
Cynthia is the mother of a PSC patient, and she submitted her daughter’s astounding vancomycin story. Cynthia’s daughter (who’s name will remain anonymous for privacy reasons) started taking 2,250 mg of the ANI Pharmaceuticals brand at age 15. She was in stage one fibrosis at the time and also lives with ulcerative colitis. She began […]