Who else is super into the Enneagram Personality Test!? I’ve been really diving into it lately and made some interesting comparisons between my personality type and the way I advocate for myself as someone with chronic illness. Before I dive in, I’d love to know what Enneagram Type you are! Let me know in the […]
My PSC and Vancomycin Advocacy Plans and How You Can Get Involved
It took me ten months to find a doctor who would prescribe me vancomycin and one year to finally find a hepatologist who was willing to help me pursue an official PSC diagnosis via liver biopsy. This is a long time, and I know many others have waited much longer. It doesn’t have to be […]
When Your Diagnosis Isn’t About You Anymore (And Why It’s a Good Thing)
Celebrating my five-year ulcerative colitis diagnosis this year, I had an epiphany. I realized that my diagnosis isn’t about me anymore. I’d started out sharing my story to find community and emotional healing, and now I share my story to help others. If you find yourself in a similar boat, keep reading to see why […]
5 Practical Ways to Launch Your Patient Advocacy Journey
So, you’re interested in becoming a patient advocate. That’s awesome! I truly believe that creating inspirational and educational content for others is a serious silver lining to living with chronic illness. Although you know that sharing your story will be amazing and empowering, starting your journey of patient advocacy can feel a little intimidating, too. […]