In early July 2022, I learned from the American Association for the Study of Liver Disease (AASLD) that they’ll be updating their PSC Guidance to limit the use of oral vancomycin to clinical trials. Their Guidance will also state that treating IBD associated with PSC is outside their scope. If this AASLD Guidance passes, insurance […]
6 Signs You Might Have Iron-Deficiency Anemia (And What to Do When Your Doctor Doesn’t Believe You)
The last few months of 2020, I felt off. I blamed it on my chronic fatigue at first. But after listening to my body and noticing some very abnormal symptoms, I brought up my concerns with my gastroenterologist. In this blog post, I share the six signs that pointed toward iron-deficiency anemia, and four ways […]
How Personality Type Can Correlate with Self-Advocacy
Who else is super into the Enneagram Personality Test!? I’ve been really diving into it lately and made some interesting comparisons between my personality type and the way I advocate for myself as someone with chronic illness. Before I dive in, I’d love to know what Enneagram Type you are! Let me know in the […]
When Your Diagnosis Isn’t About You Anymore (And Why It’s a Good Thing)
Celebrating my five-year ulcerative colitis diagnosis this year, I had an epiphany. I realized that my diagnosis isn’t about me anymore. I’d started out sharing my story to find community and emotional healing, and now I share my story to help others. If you find yourself in a similar boat, keep reading to see why […]
5 Practical Ways to Launch Your Patient Advocacy Journey
So, you’re interested in becoming a patient advocate. That’s awesome! I truly believe that creating inspirational and educational content for others is a serious silver lining to living with chronic illness. Although you know that sharing your story will be amazing and empowering, starting your journey of patient advocacy can feel a little intimidating, too. […]
World IBD Day: Spreading Awareness for an Invisible Disease
Ever since my ulcerative colitis diagnosis in 2014, I get so pumped every May! May 19th is World IBD Day and May 18th – 21st is Digestive Disease Week! I love customizing blog and social media content around the specifics of my IBD journey during these awareness days. In this year’s World IBD Day post, […]